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politicat

(9,810 posts)
24. No, the state doesn't pay. We do. Her former state regs put her in LTC.
Mon Oct 6, 2014, 08:52 AM
Oct 2014

My grandmother has Type II, and a year ago, had massive muscle wastage, a pretty major opiate dose and fell frequently. When she self-selected her diet or ate what the rehab facility provided, her blood sugar spiked and plummeted regularly because both she and her local community are a heavy carb society (as in noodles on top of mashed potatoes with corn on the side?). That put her on sliding scale insulin. Her physicians had prescribed a huge daily dose of OxyContin for post surgical pain and moderate arthritis. The falls, plus the insulin meant that the state of Indiana said she had to be in LTC.

Of course, she was falling because she ate terrible food, so her blood sugar was awful; because the insulin made it worse by spiking/troughing, and the opiates made her unsteady, unmotivated and foggy. (She does have cognitive damage from her strokes, but just getting her off the opiates has done wonders for her cognition.)

She was also deeply depressed in LTC because it was noisy -- they use 110 db pressure alarms to keep people in their chairs and beds -- and she had no privacy. So add in sleep deprivation and startle responses... Many of her issues were iatrogenic.

I moved her to Colorado where we don't use pressure alarms at all; we got her on a carb controlled diet and her type II went back to only needing oral meds; we got her off the oxy and only an NSAID and she's much better. Colorado allows her to be in AL even though she does fall about once every 3-4 weeks, and she's allowed to go out on her own. She's had physical therapy to help her build balance and muscle, and while she'll never marathon, she never did in the past, either.

But yes, we're paying for it. AL is always self pay, though with Veterans Affairs Aid and Attendance, it can be helped a little.

Recommendations

0 members have recommended this reply (displayed in chronological order):

I've got distant support. politicat Jun 2014 #1
I'm glad your situation is "reasonably manageable." Habibi Jun 2014 #2
Blog xecaps Oct 2014 #20
Are you saying that your state somehow pays for assisted living? I don't know what you mean pnwmom Oct 2014 #22
No, the state doesn't pay. We do. Her former state regs put her in LTC. politicat Oct 2014 #24
pretty much alone here Alameda Jun 2014 #3
Do you have any supportive resources? Habibi Jun 2014 #4
Resources for respite: politicat Jun 2014 #5
I think that "first rule of caregiving" is awesome and yet Habibi Jun 2014 #6
What xecaps Oct 2014 #23
Am I sure about what? Habibi Oct 2014 #25
Mostly alone alcina Jul 2014 #7
Vent away! and welcome! Habibi Jul 2014 #8
Thank you, Habibi alcina Jul 2014 #9
Isn't it, though? Habibi Jul 2014 #10
wow xecaps Oct 2014 #21
You hit a sore spot with that -- Hell Hath No Fury Aug 2014 #11
Ugh, I'm sorry for your situation. Habibi Aug 2014 #12
Thanks for the support -- Hell Hath No Fury Oct 2014 #13
Venting is good! Habibi Oct 2014 #15
I live with my grandson and his family. I also get help with some of my care. I get rides to health jwirr Oct 2014 #14
Very important to accept help Habibi Oct 2014 #16
I ended up placing her in a foster care home which I was fortunate enough to have trained myself. jwirr Oct 2014 #17
In so many cases Iwillnevergiveup Oct 2014 #18
I *do* have an Aunt nearby Aerows Oct 2014 #26
Going alone Aerows Oct 2014 #19
im alone... samnsara Apr 2017 #27
My brother lives in town, and recently retired, but... LudwigPastorius Mar 2022 #28
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