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Meowmee

(9,212 posts)
49. So sorry ๐Ÿค—๐Ÿค—๐Ÿค— ๐Ÿ˜ข
Sun May 4, 2025, 03:18 PM
May 4
It is insane and criminal that this can even happen. These people are crooks and criminals of the worst kind- who exploit sick people who have no choice. There should be controls on all hc costs etc.

I hope you find a way to get it paid for if you lose your insurance. Why are you losing your insurance? Definitely look into the whole medicaid route too.

I looked it up and something at the link talks about financial aid foundations, I don't know if this could help you. I am sure you probably read this already but I will link these just in case they can help you. I think the second or first link specifically has info on help for non insured patients from Astra Zeneca:

Who can apply?
People without health insurance
Medicare Part D and/or B recipients
Those who have recently experienced a financial crisis
Residents of the United States
Eligibility rules apply, please call an AZ&Me representative for more information at 1-800-AZandMe (1-800-292-6363).

https://www.everydayhealth.com/cancer/can-i-get-cancer-treatment-with-no-insurance/

https://www.myaccess360.com/patient/lynparza-olaparib/patient-affordability.html

https://www.lynparzahcp.com/patient-support/uninsured.html

In a much more minor story, I have been on Tymlos for the past 2 years or so after a spinal compression fracture. At first the copay was $25. I still got the company copay assistance and it was free. I knew that would not last because I have been through this before.

Then about 3 months later, the ins tells me the new copay is now $787! That is just the copay, for a one month pen. It is injected daily. I still have the copay assistance and it is free.

But I live in fear one day they are going to bill me that copay or thousands more etc. One month they messed up the billing and I was billed that copay- I had to call several times to get it straightened out. This is simply an injection pen for small dose abaloparatide- synthetic parathyroid hormone- which in small doses stimulates bone growth for those with osteoporosis. There is no reason for these prices except greed and criminality. It has to stop.

I have had severe hives to the point I had to get epi pens now and have stopped tymlos for now to see if it is involved plus I need a break as it was already causing a lot of other symptoms which were getting harder to tolerate.

Recommendations

0 members have recommended this reply (displayed in chronological order):

it is EXTORTION Skittles May 3 #1
That was my first reaction, too! herding cats May 3 #2
Sometimes big Pharma companies say in their ads that spooky3 May 3 #3
I Did ask, as the $500 a month before the Avastin is added in is too much. herding cats May 3 #5
Sorry to hear that. I hope there is change before August. Nt spooky3 May 3 #10
Thank you. herding cats May 3 #11
Can you get on disability and get Medicaid. I don't know if they would pay for expensive drugs. kerry-is-my-prez May 4 #65
I hope things work out, too. ๐Ÿ™๐Ÿ™๐Ÿ™๐Ÿ’™๐Ÿ’™๐Ÿ’™ LiberalLoner May 4 #45
Sorry if these suggestions are futile, snot May 3 #4
Appreciate the suggestion. herding cats May 3 #7
Ugghh! snot May 3 #20
My RA treatment costs enigmania May 3 #6
WTF Skittles May 3 #8
How can you afford that?! herding cats May 3 #9
I get samples and hope for the best. enigmania May 4 #54
It's so far beyond not right. It's inhumane. Phoenix61 May 3 #12
Inhumane sounds right. herding cats May 3 #16
I am so very sorry Mountain Mule May 3 #22
We need to do something and stop with the 'speaking'. OldBaldy1701E May 4 #46
That's horrible. I am so sorry you are facing this. It isn't right, at all. 58Sunliner May 3 #13
That is obscene. I sure hope you don't lose your insurance. May The Universe protect you. LoisB May 3 #14
Oh, herding cats, this is insane. And the idea brer cat May 3 #15
I hope you know you're always a light in a dark moment? herding cats May 3 #17
(blushing) brer cat May 3 #19
I can't imagine doing a go fund me. herding cats May 3 #25
Could you appeal to a neighboring Rep for help? calimary May 3 #28
I live in Texas. herding cats May 3 #31
Maybe Jasmine Crockett could draw attention to your plight and shame your rep into helping catrose May 4 #56
Well, you just hold tight and keep good thoughts at the top of your mind. calimary May 4 #59
โค๏ธ littlemissmartypants May 3 #18
I appreciate this! herding cats May 3 #23
Can Mark Cuban system help? question everything May 3 #21
I haven't thought of him until you mentioned it. herding cats May 3 #24
Just a thought. Ask Mark. He's a much better person than most entrepreneurs. usonian May 3 #33
I appreciate what he's doing, but I believe it's only for generic drugs that aren't "controlled" (needing a LauraInLA May 4 #52
I wonder if you have what my wife had? DFW May 3 #26
Check if there are mfgr coupons, rebates, discounts, etc. Eliquis, Cequa and a bunch of others have them. TheBlackAdder May 3 #27
I am sorry to hear what you are having to go through to stay alive. sheshe2 May 3 #29
Yea DENVERPOPS May 3 #30
Pharmacy tech here... buzzycrumbhunger May 3 #32
The whole system is corrupt. Bayard May 4 #36
Agree mainly. But the prices charged are more based on profits/marketing/etc. than costs of research. erronis May 4 #55
I just took that eye drop (Xdemvy) virgdem May 4 #38
Sounds like it would be cheaper Figarosmom May 3 #34
Hi from Ukraine purrmaid May 4 #39
The chemical structure of Olaparib/Lynparza isn't that complicated. eppur_se_muova May 3 #35
Not sure that is simple IbogaProject May 4 #50
To an organic chemist, it's pretty simple. No chiral centers. No fused rings. Two amide bonds. A hydrazone. eppur_se_muova May 4 #57
Ok so price gouging IbogaProject May 4 #60
That's kind of weird, since it's a small molecule drug. However, I didn't know there was an effective treatment... NNadir May 4 #37
I've got you beat with Nucala injections. pandr32 May 4 #40
It costs 20k/month for my moonscape May 4 #41
๐Ÿ’” It's terrifying, is what it is. Heartfelt hugs, hopes, wishes for your & our collective future โค๏ธ Hekate May 4 #42
Ohh Cat, It's So Heartbreaking Cha May 4 #43
Another option not mentioned above TommyT139 May 4 #44
Thank you for raising the issue and good luck to you โค๏ธ surfered May 4 #47
The prices are all a scam - TBF May 4 #48
So sorry ๐Ÿค—๐Ÿค—๐Ÿค— ๐Ÿ˜ข Meowmee May 4 #49
I am so sorry you are going through this but I can certainly empathize. My husband has an incurable but Nanjeanne May 4 #51
I think this is why Linda ladeewolf May 4 #53
I hope Medicare is not too distant in the future for you wolfie001 May 4 #61
Wouldn't you be eligible for the ACA? DET May 4 #58
And yet, instead of asking what drove Luigi to his act of violence against the United Health Care CEO, PatrickforB May 4 #62
So beyond sick of medicine rip offs, don't citizens help with this R&D often? Brainfodder May 4 #63
Damn Solly Mack May 4 #64
Latest DiscussionsยปGeneral DiscussionยปWhoa! My Lynparza cost ri...ยปReply #49