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'Fatigue Can Shatter A Person"/ The Atlantic (Original Post) sprinkleeninow Jul 2023 OP
Thank you for posting this important information. niyad Jul 2023 #1
Many of us are living it. sprinkleeninow Jul 2023 #2
A very dear friend was one of the first officiallly diagnosed with ME/CFS niyad Jul 2023 #3
I tested positive for Epstein-Barr around 1986-87. sprinkleeninow Jul 2023 #4
I have never felt the same samplegirl Jul 2023 #5
I hear you. Even if I did have a mild case, actually asymptomatic, end of '21, sprinkleeninow Jul 2023 #8
Diagnosed with ME/CFS in 1970. Duppers Jul 2023 #6
An apt description. Hellacious. sprinkleeninow Jul 2023 #7

niyad

(119,489 posts)
3. A very dear friend was one of the first officiallly diagnosed with ME/CFS
Fri Jul 28, 2023, 10:35 PM
Jul 2023

(she lived in Incline Village), so I have been familiar with this for many years. I always remember the story arc in "The Golden Girls", and Dorothy's struggle to find a doctor who would take her seriously.

sprinkleeninow

(20,540 posts)
4. I tested positive for Epstein-Barr around 1986-87.
Fri Jul 28, 2023, 10:53 PM
Jul 2023
Answered questions online at the CFIDS Foundation several years later. Had 19 of 22 symptoms. Doc claimed thinking having chronic fatigue was academic. Many doctors would diagnose that "it's all in your head" and then prescribe anti-depressants. I refused, so I suffered. Now I believe it's a validly recognized disorder that disability would pay for. Of course too late for me. All these years.

samplegirl

(12,027 posts)
5. I have never felt the same
Fri Jul 28, 2023, 11:13 PM
Jul 2023

Last edited Sat Jul 29, 2023, 12:08 AM - Edit history (1)

since Covid. I’ve had 5 shots altogether. I here it’s spreading hear it’s again in Ohio.
I think the stress of Covid alone has left many people so burned out from it all.

sprinkleeninow

(20,540 posts)
8. I hear you. Even if I did have a mild case, actually asymptomatic, end of '21,
Sat Jul 29, 2023, 01:16 AM
Jul 2023
it left me with conditions I had not previously. My eyes are more screwed up, gave me spells of AFib, my gait is off some.

Duppers

(28,243 posts)
6. Diagnosed with ME/CFS in 1970.
Sat Jul 29, 2023, 12:39 AM
Jul 2023

It was hell warmed over and stigma caused by the unsympathetic non-acceptance of the malady made it worse.

I was lucky enough to attend a lecture by and meet the great (unfortunately now deceased) Dr. Paul Cheney from Charlotte, NC in the late '80's. He was one of the pioneer in getting the disease accepted by the CDC.


sprinkleeninow

(20,540 posts)
7. An apt description. Hellacious.
Sat Jul 29, 2023, 01:10 AM
Jul 2023
I started feeling crappy in the early 70's. Husband's family doc who we were using listened to my symptoms and said, "Maybe you had that yuppie flu?" The medical realm wasn't very well versed about any of this back then. I would get a bug or worse, strep. Acute symptoms would pass soon enough, but I'd be wore out and feel like crap for months after. Not bouncing back fully ever.

One poor soul I read about along the way described feeling like they were stuck/glued onto or embedded in their mattress and couldn't free themselves. It can be that bad, yes.
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