“Good Afternoon, You Have Cancer"
Best wishes to Suleika Jaouad who faces a similar diagnosis to my husband, MDS that progressed to Acute Myeloid Leukemia and who is entering the hospital this week for a transplant in attempt to put this behind her.
http://secretsofcancerhood.com/
"Ten months ago, when I entered the hospital for my first round of chemotherapy, I began writing what would later be the first piece on this blog, “Good Afternoon, You Have Cancer.” In the first few days of my hospitalization, in June of last year, before the side effects had kicked in, I felt scared but ready to fight. I was bursting with creativity, ideas, and ambition about how I might learn and grow from this disease.
...As I count down the last few days before I enter the hospital this Monday for my bone marrow transplant (I’ll be hospitalized for 45 days or so), I’ve struggled with how to spend my time meaningfully, mindfully. But when I’m writing, I feel at ease. If only for a few minutes at a time. I can engage with the weighty stuff of my illness while getting lost in the creative distraction of the writing process. It’s not an antidote to the pain, but it’s a tool that’s made me feel sturdier — even, braver — during these hard times.
What started as a personal blog in January caught the attention of the New York Times. Today I’m excited to announce the launch of “Life, Interrupted,” a weekly column I’ll be writing for the ‘Well’ section.
Click here, to read my first piece “Facing Cancer in Your 20s.”
Life, Interrupted: Facing Cancer in Your 20s
http://well.blogs.nytimes.com/2012/03/29/life-interrupted-facing-cancer-in-your-20s/?ref=health
"... A week later, my worst fears were confirmed. “Leukemia,” the doctor said, dropping the word like a bomb. Soon enough I would learn the specific diagnosis: myelodysplastic syndrome, a disorder of the bone marrow. In my case, the disease growing inside me had morphed into acute myeloid leukemia. I would need intensive chemotherapy and a bone marrow transplant to save my life.
The long-awaited answer reverberated in my head, and I found myself slowly pronouncing the syllables: loo-KEEM-ee-ah.
Where cancer is concerned, it’s safe to say there’s no such thing as good timing. But having a life-threatening disease in your 20s carries a special set of psychological and social challenges. It defies our very definition of what ought to be. Youth and health are supposed to be synonymous. If only I could sue my body for breach of contract with the natural order of things..."
No matter what the cancer, it is an uphill battle for all.
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I can only relive this from a caregiver's standpoint, but just reading the last update it makes me realize how far we've come from the point where she is now. Going through this at a young age is quite different as she mentions in her latest article.
